Friday, May 15, 2009
Surprise!!!
Tuesday, May 12, 2009
Baby Bump - 36weeks
Tuesday, April 28, 2009
The Nursery and Another Baby Shower! :)
Sunday, April 19, 2009
First Baby Shower
Wednesday, April 15, 2009
Baby is Beautiful
Monday, April 13, 2009
Easter! Baby Bump - 32 weeks
Thursday, April 2, 2009
Our Spontaneous Hospital Tour
Thursday, March 26, 2009
Forming the Nursery
Wednesday, March 18, 2009
Blessings
David and I are very happy to say that our doctor's appointment with the perinatologist today went well. We went in for my 28week ultrasound to check on baby and many things weighed on our minds. Praise God we were given positive news. The doctor said that our baby boy was still growing right on schedule (weighing 2lbs10oz now :) ) and that there were no new concerns. Baby was all over the place and looking adorable! We were relieved when the Dr. said that everything was stable and looking very good. :) Feet are still kicking (caught on ultrasound) and he had good movements. The Dr. did notice the left ventrical of the brain is still "slightly swollen" (like last time) but that the right side was normal and the fact that no further swelling had occurred in the last 6 weeks was a good sign. When we commented that our baby was "hanging in there" he said "he is more than hanging in there." :) Such a blessing to hear. Thank you all so much for the prayers that went out for our baby today and always. We go back April 15th for our 32week check up. It seems like forever away but after today's blessings we are content to wait on the Lord. Please continue to remember our baby in your prayers as the doctor reminded us that so much is still unpredictable. Pray that we are able to dwell on the hope we received today and the hope we have in God - not the uncertainty we still face. Pray that the baby's condition remains stable or even improves! :) (particularly with the brain swelling) so that we may have a chance of avoiding additional surgeries. And pray for our hearts to feel God's love and strength so we will be able to face whatever lies ahead. We know our God can work wonders - He has so far on our baby and we have faith in the wonders yet to come. Praise God! And thank you all.
Monday, March 16, 2009
Baby Bump - 28 weeks
Prayers
Please pray that we will have peace while we wait and faith that God will take care of everything. Pray that the doctor will see good developments and positive images on the ultrasound.
Pray that whatever the outcome of this appointment, we will have renewed strength and hope. And as always, pray that God will continue to form our baby with His hands and that if it be His Will, our miracle baby will just get better and better. :)
Thank you so much. We cannot imagine going through all this without your love, prayers and warm thoughts.
A psalm for our baby. :)
"He has put His angels in charge of you, to watch over you wherever you go." Psalm 91:11
Friday, March 13, 2009
Some Special Babies
But there are some special babies I wanted to take note of today for different reasons. One is a new addition to the world - Baby Isaac, born just yesterday some friends of ours from church. Isn't he precious! I'm not sure what was in the water this year but he's number 5 of babies born to friends or family of mine this year! Baby fever!
I also wanted to share with my family and friends 3 other special babies (well...one's not really a baby anymore and would probably resent that :)) whose blogs I follow and get so much from. These kids are beautiful and amazing and bring me so much hope. They have all been diagnosed with SB and though they are all different, they all bring the same smile to my face. They are just 3 out of many I have met through a Spina Bifida Kids group on BabyCenter.com for mom's who are raising children or are pregnant with children who have been diagnosed with SB. They captured my heart. I know how I felt the first time I saw them and read about them - and how comforted and encouraged I am by their parent's strength and love. Just thought you should meet..
Nellie Greyson and Nate
These are not all recent photos. :) Just some of the many pictures I thought were cute. Nellie is almost a year old now. You can check out their blog under MeinhardtFamily. Greyson (OurLittleGibblet) was just born in February and is very special to me. (Maybe its because he seems so close to our own little boy. And he's precious. :)) Nate is the oldest of the three at (I think) 2.5 yrs (ColleenandNate). His mom is the leader of the group I joined and she is amazing! 100% there for anyone who comes her way. They are just rays of sunshine to me and I've never even met them. I love reading about how they are doing and seeing how happy they are. So if you were wondering about some of the other blogs I follow...these little angels and their inspiring parents are the reason. Feel free to look at their blogs - their parents would love to share the story of their darlings with you I'm sure - and it can help shed some light on what "spina bifida" really is, and what it is not. It really helped me to see the families who have been there and are there living happy, loving lives - like the kind of life David and I want for our little miracle.
Wednesday, March 4, 2009
Baby Bump - 24 weeks
Friday, February 27, 2009
Welcome to Holland
By Emily Perl Kingsley, 1987. All rights reserved.
I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this...... When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting. After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, "Welcome to Holland." "Holland?!?" you say. "What do you mean Holland?? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy." But there's been a change in the flight plan. They've landed in Holland and there you must stay. The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place. So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met. It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around.... and you begin to notice that Holland has windmills....and Holland has tulips. Holland even has Rembrandts. But everyone you know is busy coming and going from Italy... and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say "Yes, that's where I was supposed to go. That's what I had planned." And some of that pain will never, ever, ever, ever go away...because the loss of that dream is a very very significant loss. But...if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things ... about Holland
M.F.E.O.
We hit the 6 month mark and I already find myself getting impatient to meet him while at the same time enjoying every minute of having him roll and kick around inside me. And boy has he! He got the hiccups twice yesterday! It was a first for me and took a second for me to realize what was happening both times. So fun to think about. He's so active that I hope I don't worry when or if he finally settles down. We are beginning to buckle down and decorate his nursery (fun!) and will probably start the registering process soon.
These are fun times and hard times as we dote on the idea of our little boy while trying to push back the worry of the unknown that threatens to bring us down. However, most of the time we're happy, hopeful and postive so keep those encouraging prayers and thoughts coming so we can continue to walk by faith. :) Thank you for all your love.
Monday, February 23, 2009
A Little "Cousin" for our Baby
Friday, February 20, 2009
Future Kickboxer
Thursday, February 19, 2009
Growing Strong!
The Power of Prayer
We went to meet with a neuro surgeon on Jan. 19th to find out more about SB (spina bifida) and what we could expect. We sent this email out following the appointment. :)
We are happy to say that our doctors appointment with the neuro surgeon today went well. Dr. Hudgins was able to tell us more about how a "typical" case like ours would go regarding the surgery and recovery of our baby. He was willing to answer any questions we had but made it clear that much of the diagnosis would depend on how things go after the operation. At this time we know that the spina bifida is in a good place (the lower on the spine the better) and that any area of concern would likely be limited to the feet/ankles (weak areas that may take time to develop) and bladder (which is commonly affected by all forms of spina bifida). The doctor says that typically children with this case of spina bifida will walk and run (Praise God!) just maybe a little later than normal. For example, it may not 11months...but more like 18 months before he starts to walk) and possibly with some help from ankle braces at some point depending on what they see as he develops. David and I agree we can easily wait a few more months before our little boy starts running away from us. :) Most likely he will be in the hospital for about 2 weeks in recovery after he is born and the surgery is done. At this point it is also likely that a shunt will have to be put in to drain any fluid off the brain that will likely occur following the spinal surgery. After they release him to come home the doctor said that home life will likely be "just like having any other newborn." (So good to hear!) The doctor also seemed positive about the bladder control issues stating that either medication or sometimes surgery will help with any problems when the time comes. We are so thankful for the prayers and encouraging words that have been offered and that we know we will continue to receive. Even after the surgery, we will be meeting with doctors very frequently for the first year of his life and then at least once a year through his childhood. There are many other possible worries of course. Having a healthy baby is always a miracle -so many things have to go right even without the risks we are aware of. Prayers of patience until the baby's birth and surgery as well as an "uneventful" pregnancy in the months to follow are appreciated. We want to keep everything else normal and healthy for the next 4.5 months -- no more complications. :) Prayers of healing in the weeks and months to follow his birth are still greatly needed as well. Thank you so much for this great comfort -- the power of prayer.
Fear and Faith
Today we went to see the recommended doctor for a second opinion. We were prepared to hear the same horrible news and were stunned when the ultrasound showed the neck/upper spine of the baby was fine and intact. The spina bifida is still present, but at a much lower point on the spine. In these cases the lower the opening the better. While the spina bifida still poses certain risks, (mostly to the lower extremities like the legs, feet, and bladder) it can and will be treated. We will be meeting with a neurosurgeon who will tell us about the surgery that will be done to fix the opening upon birth of the baby. During all this we wondered how this change of events could have happened. The doctors reasoned that the machine yesterday was not as accurate or that maybe the baby's position caused them to mistake the location of the opening. We feel God's hand in this new development and we will not cease to pray for the health and development of our baby as we continue to meet with the doctors.
We cannot begin to thank you all enough for the thoughts and prayers - our families have both felt an unexplainable peace and now a new hope for our future that we can only attribute to God's hand resting on us. We need your love and prayers more than ever now and ask specifically for you to pray:
* For the baby's health and continued development (especially that of the legs and bladder)
* That the opening will not widen or leak fluid to the brain (which is a common risk with spina bifida)
* That God will steady the minds and hands of the doctors throughout the pregnancy and surgery.
* That God will continue to give David and I the strength, peace and faith we need during the uncertainty and worry that lies ahead.
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