Thursday, February 19, 2009

The Power of Prayer

We went to meet with a neuro surgeon on Jan. 19th to find out more about SB (spina bifida) and what we could expect. We sent this email out following the appointment. :)
We are happy to say that our doctors appointment with the neuro surgeon today went well. Dr. Hudgins was able to tell us more about how a "typical" case like ours would go regarding the surgery and recovery of our baby. He was willing to answer any questions we had but made it clear that much of the diagnosis would depend on how things go after the operation. At this time we know that the spina bifida is in a good place (the lower on the spine the better) and that any area of concern would likely be limited to the feet/ankles (weak areas that may take time to develop) and bladder (which is commonly affected by all forms of spina bifida). The doctor says that typically children with this case of spina bifida will walk and run (Praise God!) just maybe a little later than normal. For example, it may not 11months...but more like 18 months before he starts to walk) and possibly with some help from ankle braces at some point depending on what they see as he develops. David and I agree we can easily wait a few more months before our little boy starts running away from us. :) Most likely he will be in the hospital for about 2 weeks in recovery after he is born and the surgery is done. At this point it is also likely that a shunt will have to be put in to drain any fluid off the brain that will likely occur following the spinal surgery. After they release him to come home the doctor said that home life will likely be "just like having any other newborn." (So good to hear!) The doctor also seemed positive about the bladder control issues stating that either medication or sometimes surgery will help with any problems when the time comes. We are so thankful for the prayers and encouraging words that have been offered and that we know we will continue to receive. Even after the surgery, we will be meeting with doctors very frequently for the first year of his life and then at least once a year through his childhood. There are many other possible worries of course. Having a healthy baby is always a miracle -so many things have to go right even without the risks we are aware of. Prayers of patience until the baby's birth and surgery as well as an "uneventful" pregnancy in the months to follow are appreciated. We want to keep everything else normal and healthy for the next 4.5 months -- no more complications. :) Prayers of healing in the weeks and months to follow his birth are still greatly needed as well. Thank you so much for this great comfort -- the power of prayer. 

No comments:

Popular Posts

Related Posts with Thumbnails