Yesterday - sleeping in recovery after his surgery. Look at that giant pacifier! lol.
Baby Jet is two days old today! :) It seems like forever since I saw him in his little bed being wheeled away to his special ambulance, but at the same time time is flying by as I realize I never updated after his surgery yesterday. Updating is a little more difficult when you're recovering from major surgery. In so many ways I'm floating on air - so in love with my little boy and feeling wonderful. But then I move to sit up and I am greeted with soreness and a dizzy feeling that keeps me from staying up for long. Well as my good friends with SB babies can relate... I feel like we still don't know anything! We know he is doing well (vitals are strong, he wiggles around and moves his legs and has good head control already) and sleeping well and eating pretty good so far.
Here he is yesterday after his surgery.
*** Further on in the post are some pictures of the surgical area on his back. It's not pretty so if your squeamish you may not want to linger on the pictures below.***
The neurosurgeon says the surgery yesterday went well (don' t you love that word "well") and had positive things to say about the location of the SB (l5, s1) - low is good. He did tell us that because of the size of the opening in the skin itself (around the SB opening) they had to make some larger incisions in order to stretch the surrounding skin to close up the exposed area. This sounded scary to me...not having enough skin to stretch...and painful as I thought of my precious baby, but other than a possible longer recovery the doctor did not seem to think there would be problems. However it did make for a very harsh looking y-shaped trail of staples in our little boy's back.
These pictures are not typical baby photos but David and I found it so helpful to see ANYTHING related to SB and the surgery when we were first diagnosed that I wanted to post it for any mom's and dad's out there expecting a baby with this little "extra" in their lives. :) I've heard from David that the pictures look worse than the reality and that today it's even less swollen and bruised looking. Although I still think he is the most precious thing ever.
David just called me to say that he spoke to another doctor and nurse who had the ultrasound results for Jet's head ultrasound last night and his bladder/kidney test this morning. Everything looks good so far. No further swelling on the brain at this time (praise God) and they will check it again tomorrow. It is very good news that we have avoided fluid on the brain this far. We still know it is a very real possibility that Jet may still in time need a shunt, but every day that he doesn't is a chance he won't have to so we are happy. His bladder is working but not yet emptying fully on his own. They don't know yet whether this is temporary weakness because of the surgery or a more long term issue so they are just waiting and watching. Kidneys tested fine. Breathing/lungs are great. He is sleeping soundly and his back is healing "remarkably well" for the size of the incision the doctor says. No problems so far. Go baby Jet! He is so strong and such a fighter. We will let you know of any news as it comes. Thank you again for your prayers and encouragement. I hope to post a video of him taking his first bottle last night as well as some new pictures from today's visit.
David is doing a fabulous job taking lots of pictures for Mommy!
I love seeing my little boy!