Saving Shea: The Rainbow

You know those moments in your life when you feel time stop.

Whether it be that split-second when you thought that car was going to hit you.

Or the minutes you hold your breath before the doctor says "everything looks fine."

The moment that follows when you first see the ring in his hand.

And that first glimpse that you get of your newborn baby's face.

We all have them.

They can be terrifying or exciting.

The scariest or most beautiful thing you've ever experienced.

But whatever the emotion - you're shaken.

Whatever the outcome - you're changed.

And you know it was important.

And however long the moment actually lasted - you can remember how you felt at that exact moment...forever.

This is one of those moments for me.

The past 3 days all combined together in one, big, all-encompassing moment that just keeps going on and on.

And it all started when I saw his face.

This is Shea.

Shea - isn't that a beautiful name?

A beautiful name to match his soulful eyes and cropped, blonde hair.

I'm not sure how I found him. Just one of those series of events where you're reading a familiar blog, that leads you to another new and exciting blog, that tells you a story, that leads you to a rainbow, and at the end of that rainbow ...is something very special.

And 3 days ago, at the end of a beautiful rainbow - I found Shea.

And once I found him - I realized it wasn't just some series of events.

I was brought there.

My family was brought there.

And though I'm am still asking and praying and waiting to know exactly why we were brought there -

But there is one thing I am sure of.

Shea needs us.

And we are going to save him.

You may ask..why does Shea need saving?

Well, when I found Shea, I didn't just find a picture - I found a few sentences underneath the picture.

Boy, Born October 17, 2006

Shea only became cleared for adoption very recently, so we are so hopeful he will find a family quickly. He is facing the institution very soon because of his age.

From his medical records: primary hydrocephaly, shunt dependent (has one in now), disorder of function of pelvic organs, paralytic clubfoot of both feet, spina bifida. Very good and smart boy. He can speak very well, he can only sit - he is in plaster cast so he cannot stand and walk.

Shea will remain bedridden the rest of his life once he is transferred.

That's right.

Shea is an orphan.

An orphan who is 4 years old.

An orphan facing an institution in Ukraine.

An orphan born with Spina Bifida.

Do you see now why Shea needs saving? I'm sure it's not hard to guess why this little angel has grabbed a hold of my heart and won't let go -so closely connected to the story of my own sweet little angel. It's probably not a mystery as to why David and I have stayed up late for 3 days talking about what to do...what this means to our family...how we can save him. And like I said, I don't have all the answers right now - but I did contact the people at Reece's Rainbow and we signed up to be Prayer Warriors for Shea as well as volunteered to help raise money for his adoption grant. There is no obligation from Reece's Rainbow - they don't call you up or keep tabs on your efforts. It is all up to the individual. It was up to me to contact them - and it is up to us how much we help. On the right margin of the blog you will see a "chipin" link allowing anyone and everyone to donate toward Shea in his journey finding his family. As you can see on the "chipin" link - Shea's funds are nothing. He has nothing. And adoption in Shea's country is 25,000 dollars on average. This is where we need your help.

Please.

You can help us save him.

The woman who inadvertently led me to Shea, is hosting a fundraiser for another little baby named Cliff. In her plead for help she expressed perfectly what I would say to you about Shea.

Please read it here.

It is exactly what I want to say.

Hopefully soon I will have a blog button to display our mission for Shea and link back to this post. When I do, I would be so grateful if my fellow bloggers would add it to their as well.

If you don't blog, please copy and paste the link to this post (in the web address bar above) on facebook or copy the post itself to an email. We need as many helpers as we can get to raise enough funds to make it possible for Shea to be adopted as soon as possible. He needs money. Any amount you can give is enough. It will make a difference. We can't be sure how long he has before he will be forced to leave the orphanage and be committed to an institution and far from any help.

And please, pray for us.

Pray that God will continue to guide us and use our family for His glory.

Pray that His will for will be done for Shea and that He will keep Shea safe until he is able to be adopted.

Pray that Shea will be given healing and strength and peace every day, and feel God's love upon him.

Thank you so much, and may God bless you.

- David, Joanna and Jet

Happy Belated-Birthday Rocco!

I can't believe we missed it!

The last day of November just slipped by unnoticed.

November 30th came and went without fanfare or festivities - but that doesn't change the fact that this November 30th we had great cause for celebration.

For as of yesterday -

November 30th, 2010 -

Rocco is one year old.

Now hold on a minute (you're thinking) who in world is Rocco?!

Why are we celebrating his birthday?!

Why have we not heard of him before?!

All valid questions.

And I will answer all of them.

Rocco joined our family a year ago yesterday. We knew it was possible he would be coming to live with us - we just didn't know for sure if or when. When we first heard the news that Rocco was indeed going to be joining our family - we felt heart-sick, scared, and worried. We had hoped we wouldn't ever need to meet him. We weren't sure what this addition to our family would mean. How he would change our lives. I cried. We prayed.

We hadn't wanted him.

But we knew in our hearts, that Rocco coming would be a good thing thing.

The best thing.

Because as much as we didn't want Rocco -

Rocco was coming to save Jet's life.

Our Jet needed Rocco - and Rocco would be there to help him.

Now Rocco comes from a large family. And we had heard stories of some of his family members who had also gone to live with different friends of ours. Sometimes the stories were good - successful stories that encouraged us that everything was going to be okay.

But sometimes the stories were full of frustration, difficult transitions, and disfunction.

We hoped Rocco would be an answered prayer - not an unwelcome nightmare.

The day we got Rocco is a bit of a blur.

We were up early and on our way to prepare to receive him. Family met up with us to offer support. We waited for the time when Jet would have to leave us to go get Rocco - only Jet could go - Rocco was for Jet.

When we were alone we prayed that Jet and Rocco would have a successful meeting - that Jet would accept Rocco and that Rocco would be able to help Jet the way he was supposed to.

God heard our prayers.

The meeting was successful.

We stayed overnight so we could be sure that Rocco was doing his job and Jet was okay.

The next day we went home - and Rocco went with us.

He is still with us.

He has been with Jet every minute and has done his job perfectly every day.

Every day - for one year.

We have never had a problem.

We have never had to separate them.

He has been a Rock-Star - just like our little Jet.

They make the perfect team.

That's why we named him Rocco. He is strong - rock solid.

And I looked it up today -the name "Rocco" means "rest".

Very appropriate considering he did bring us peace of mind and rest this year.

So today we celebrate his (belated) birthday - by thanking Rocco for 1 year of successful service.

And thanking God for allowing Rocco to be an option to save our then 6 month old baby boy.

Because fluid on the brain - it's not okay.

The pressure and problems hydrocephalus can cause are innumerable - and often deadly.

Without the doctors and technology we have today - that allowed "Rocco-the-shunt" (did you guess it? :) yep - Rocco is Jet's shunt.) to be placed in our son's head to drain that fluid off -

we might not have our little miracle today.

So Happy Birthday Rocco!!

You are a life-saver and a blessing and we are so thankful for you!

A Year and Half of Heaven-Sent Happiness

Who knew 18 months could be so handsome?

Or curious..

Or thoughtful...

Or funny...

Or silly...

Or super wonderful!

18 months has brought the words "aptitude" and "attitude" to new levels. :) Jet is surprising us everyday with what he knows and can do - taking steps and getting so strong and independent. And with that independence has come a brand new feistiness that neither of us have ever seen before! lol. Jet is all about what Jet wants to do and when and how he wants to do it. He's still as sweet and cuddly as pie - but instead of a sweet peach pie he's more of an apple tart! He's learning what is okay and NOT okay to do though and we're staying on our toes trying to teach and guide this little elf into getting presents instead of coal in his stocking. ;) But he has never been more loved, adored and cherished as he is now and we are so grateful for this little boy.

Happy Half-Birthday little man!

So Thankful

You know you've been busy...

When your son takes his FIRST STEPS 4 days ago and you haven't sat down to blog about it!!!

I mean, what is going on here?! Can any of you believe it!? I am usually creating reasons to blog and now I have a HUGE one and I can't sit down at the computer!

Until now...

So yes.

Our little boy took 3 and 4 steps at a time several times this past Saturday!

YAY!!!!!!!!

Did we know it was coming? NO!

But did I have the camera ready? YES! lol.

Well technically this is a reenactment - but I did get video on my phone of the actually first stepping moments.

Sweet little miracle steps.

You know, we experience so many feelings as parents. Joy, anticipation, fear, love, sadness, gratitude - but all these are never so acute or ever-changing as those I've seen in those families who have special journeys - like ours - with SB. One day you're standing on top of mountains, the next you feel as if you'll never get out of the darkest valley you've ever been in. I suppose all life is that way at times - but those families who I'm speaking of (including my own) can especially relate. It's a miraculous, tumultuous journey and I can't witness a single milestone or give thanks for a single blessing without thinking of everyone else on this journey with us. Having these families with us - encouraging us - inspiring us - is possibly the greatest gift God could have given us to help us through. I feel it's how He tells me - "I've not left you alone. Here our some others - like you - who will help you. I will help them to help you. And you will help them as well."

You - all of you - you are God's gift to me.

And I am so thankful.

But along with the blessings we offer each other in the form of understanding and support - I have to admit there are times when I fight feelings of sadness or worry, when I compare my child with other children on this journey.

"Will my child ever do that?"

"Should my child already be doing that?"

I'm sure all of us have heard such questions echoing in our heads. Why do some families keep facing obstacles that others don't have to? Why is that little boy crawling while my older child can't sit up? Why is her child talking when my child is 5 months older? Don't they all have Spina Bifida? Wasn't her lesion in the same place as my daughter's? Why are they so different??

I find it part of my routine explanation of SB to say to others "well, every child with SB is different, just like every child without SB is different, no matter how similar they may seem" - but do I believe my own definition? Apparently not. I compare and question along with everyone else in the world. Why do we do this?? It just puts pressure and strain on an area of our life that in so many ways we can't control. It blinds us from seeing the little blessings before us when we have our sights set on the "next big milestone"! We can't celebrate the little victories when we keep trying to take on the next battle.

I'm sure many of my fellow SB mommies look at Jet and think "Wow. He is doing so well! I wish mine were doing "_____." (fill in the blank). And I agree! He is doing amazing! :) But I wanted to share that I don't always see things that way - I see other SB kids walking at 16 and 17 months and mine's 18 months and just starting. I hear them talking and counting and sounding so adorable! And I can count Jet's words on 2 fingers (although I have to say I think "mama" and "dada" are the best words anyone could ever say. :) But this comparing - though natural- isn't healthy. It makes me feel like we're not doing good enough. It brings us down. It distracts us.

"You're crazy! Jet is doing so GREAT!" you'd probably say. And yes - I am! We are all crazy! Because every time we take these things for granted - every time we wish our children were doing something better then what they've just accomplished - it's like we are throwing these blessings in God's face and saying "this isn't good enough - I want him to crawl/stand/walk BETTER, SOONER, FASTER!" We don't mean to - but we stop being thankful and start being demanding. It makes me shudder to think how many times I've done that.

But God is so GOOD!

He doesn't take the blessing away or send a lightening bolt to strike me where I stand.

He gives me time.

He gives me you.

He gives me perspective.

My bracelet from Kari came today - I was so excited as I was unwrapping the tissue paper - couldn't wait to put it on! I didn't remember what I had asked to be embossed on the little ring charm until I turned it around and read with great familiarity - PERSPECTIVE.

Beautiful, Wise Perspective, herself, had arrived once again and now joins me on my wrist to follow me wherever I go. And as I type she reminds me once again to Thank God for the blessings we've been given. For the gifts our children have - the different talents and ways they excel. They don't all do things the same, or at the same time, or in the same way - but they all do one amazingly, beautiful thing - they give perspective. To us. To our families and friends. To the SB community. To total strangers.

The give perspective every day to everyone they touch with their lives.

And what a precious gift that is.

I, for one, can never have enough.

And I am so thankful.

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I saw this offer on another friends blog and had to do it myself! Christmas cards can be time consuming but I love getting them and Shutterfly has so many cute designs this year! Last year was our first year doing Christmas cards (had to show off the little guy of course!) and I loved how they turned out. This year we are using Shutterfly and I can't wait to get started! There are so many beautiful cards to choose from! One that instantly caught my eye is this one:

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I love the contrasting colors and the simple design. The message is short and sweet and matches the youthful look of the card. The fact that the photo is the focal point made this design an instant favorite (you know I love pictures! lol) and it keeps it from looking too busy. I can picture my own little guy on the front which of course would be just precious. :) Right?!

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It has the option of using multiple photos (if I can't make up my mind!) and I like the contrast of the black with the faded green and red. Of course it will depend on the picture we choose and I haven't quite narrowed that down yet but I can't wait to decide on the perfect picture for our Christmas card!

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Walk n' Roll

Sunday was breezy, beautiful and bursting with fall colors - a perfect day for the SBAG Walk n' Roll.

Jet was admittedly more excited about the leaves at the park than the walk itself.

And it was fun look back at last years walk and see how much he's grown.

Last year we had late notice about the Walk n' Roll but still managed to pull together a fabulous team to walk with Jet as well as do some last minute fundraising. We looked awesome.

This year was oddly enough a repeat - we tried to find out when or if the Walk n' Roll was even happening with no luck...until the last minute. And rather than attempt another chaotic fundraising and team-organizing, we decided to go small this year - but small can be just as big when love in involved...and you know we had love.

Jet and his Aunt Kayleigh. So glad to have her close by again. :)

David did a week long fundraiser at school to raise a little money - and we donned our amazing, new T-shirts ...

And we rocked it!

And Jet walked it!

...well, some of it. :)

And we had a blast. :)

Redefining Spina Bifida all the way!

Dear Grandpa...

I heard that you were not feeling good

So, like a good little grandson should

I made for you a special treat,

To help you get back on your feet!

(Too bad before we two could meet...

I had to eat...your special treat.)

But I'd also like to say...

A very Happy Veterans Day!

To my Grandpa Penny, Geedaddy Palmer, Papa Vaughn and all those who have served our country.

Thank you.